What social services are available in Québec?

Social services for persons with disabilities in Québec are a major social issue. They aim to ensure the inclusion, dignity and well-being of this vulnerable population. This sheet provides an overview of the facts, current situation, available statistics and recommendations regarding these services.

Québec has several laws and regulatory frameworks designed to protect the rights of persons with disabilities. These include the Charter of Human Rights and Freedoms, the Act to secure handicapped persons in the exercise of their rights with a view to achieving social, school and workplace integration, and the government’s À part entière policy, focusing on the social inclusion of persons with disabilities. Social services include a range of supports, including:

  • Assistance with daily living and accompaniment
  • Adaptation of the living environment
  • Access to education, employment and recreation
  • Technical and technological assistance

Despite significant progress, persons with disabilities in Québec still face many challenges. These include limited access to services, architectural and social barriers, discrimination and a lack of public awareness. These barriers underscore the importance of intensifying efforts to ensure a truly inclusive and equitable society.

Overview of the situation

Although services are available, many persons with disabilities face barriers to accessing them. These challenges include long waiting lists, restrictive eligibility criteria and complex administrative procedures.

Despite improvements in social inclusion, these individuals continue to endure isolation, stigma and marginalization in various aspects of social, cultural and community life.

The current state of social services in Québec is marked by significant fragmentation, which severely undermines the effectiveness and quality of the supports offered. This fragmentation results in:

  • The dispersal of responsibilities among several government agencies
  • Uncoordinated programs and services
  • Gaps in continuity of care and support

Causes and their impacts

  • Multiple players and inefficient resources

    The diversity of actors involved in the delivery of social services often results in duplication and overlap. This creates confusion for users and hinders the efficient use of public resources. For example, health services, social services, rehabilitation services and employment assistance programs are often managed by different departments or agencies. This dynamic complicates the coordination of interventions and the overall management of the needs of individuals.

  • Breaks in continuity of care

    This fragmentation can lead to interruptions in continuity of care, negatively impacting the quality of life of those affected. For example, a person with a disability may encounter significant barriers when transitioning from one service to another. These barriers lead to delays in access to care, gaps in follow-up, and, in some cases, a deterioration in the individual’s overall condition.

  • Heightened stigma and marginalization

    This fragmentation of social services exacerbates barriers between different sectors of society, limiting access to holistic and integrated services. This contributes to stigma and marginalization, thus impairing the autonomy, social inclusion and well-being of persons with disabilities.

Home care in need of support1 and 2

Home care is a lifeline for many persons with disabilities in Québec. These services allow individuals to receive the necessary care while enjoying the comfort and familiarity of their own homes. Skilled professionals such as nurses, caregivers and therapists, provide invaluable support in the areas of medical care, assistance with daily living, rehabilitation and emotional support. This personalized care promotes autonomy, dignity and quality of life for recipients, while reducing costs and pressure on health care facilities.

However, despite its crucial role, home care in Québec faces numerous challenges:

  • Extended waiting lists: many people remain uncertain and desperate in the face of endless wait times to access services.
  • Insufficient funding: limited resources prevent a service offering tailored to real needs.
  • A shortage of qualified staff: this undermines the availability and quality of home care.
  • The burden on families: often responsible for providing much of the informal care, families are often exhausted and struggling financially. This state of chronic fatigue can lead to burnout, requiring increased support.

In conclusion, social services for persons with disabilities in Québec play a vital role in their participation and full integration into society. Nevertheless, ongoing challenges require concerted action and policy measures to ensure:

  • Equitable access to services
  • Better organization of care
  • Support for informal caregivers
  • Real social inclusion

As noted by Health and Welfare Commissioner Joanne Castonguay:

“Despite an increase in financial resources in recent years, few people are getting the care and services they really need. Increasing budgets without reviewing the organization of services therefore seems to have a limited impact.”

Standards and obligations

Convention on the Rights of Persons with Disabilities

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty adopted in 2006 to safeguard and promote the rights of persons with disabilities worldwide. Canada, along with 183 other States Parties, is committed to complying with the legal obligations set out in the CRPD.

Article 28 – Adequate standard of living and social protection

    • States Parties recognize the right of persons with disabilities to an adequate standard of living for themselves and their families, including adequate food, clothing and housing, and to the continuous improvement in their living conditions. They shall take appropriate steps to safeguard and promote the realization of this right without discrimination on the basis of disability.
    • States Parties also recognize the right of persons with disabilities to equitable social protection and undertake to:
      • Ensure equal access to drinking water services, and to ensure access to appropriate and affordable services, devices and other assistance for disability-related needs.
      • Ensure access to social protection programs and poverty reduction programs, particularly for women and girls with disabilities and older persons with disabilities.
      • Provide adequate public assistance to persons with disabilities and their families living in poverty to cover disability-related expenses. This includes training, counselling, financial assistance and respite care services.
      • Facilitate access to social housing programs for persons with disabilities.
      • Ensure equal access to retirement programs and benefits for persons with disabilities.

    Good practices

    Enhancing home support is a must for inclusion

    Improving the accessibility of the home support program (SAD) for persons with disabilities is a key priority.

    Canada and Québec stand out for disproportionately allocating resources to housing at the expense of home care. In Québec, 9.4% of people aged 65 and over live in long-term care facilities, compared with 6.8% in Canada and about 4% in countries such as France, Germany, Norway and the Netherlands. This high proportion of accommodation, which is far more expensive, illustrates an inefficiency in budget allocations.[1]

    The majority of persons with disabilities do not want to live in long-term care facilities (CHSLDs). They wish to remain at home and actively participate in society without moving into institutions that are costly and often ill-adapted.  Investing more in home support would avoid such investments in institutional settings (CHSLDs, seniors’ homes, etc.), while offering a more human and affordable alternative.

    Home support challenges

    The Home Support Program (SAD) is seen as a critical solution but currently suffers from multiple gaps, including:

    • Underfunding

      The Québec SAD receives fewer resources than other Canadian provinces and Commonwealth countries.

    • Inequitable accessibility

      Disparities between local CLSC, CES, EESAD and other agencies, as well as between regions limit equitable access to services.

    • Unsatisfactory performance

      Too little of the budget is allocated to direct services in the field, and administrative red tape undermines the effectiveness of the funding.

    In addition, clientele living with physical disabilities (PD), intellectual disabilities (ID) or autism spectrum disorders (ASD) require adapted care that is distinct from that of people experiencing loss of autonomy. These people are often professionally active or doing apprenticeships and require flexible services that meet their specific needs.

    Priority actions

    To address these challenges and strengthen the effectiveness of the home support program, it is necessary to:

    Augmenter le budget dédié au SAD afin de garantir un financement adéquat.

    • Increase the SAD budget to ensure adequate funding.
    • Differentiate between clients (PD-ID-ASD and people experiencing loss of autonomy) in terms of service and organization.
    • Reduce red tape to improve program performance and efficiency.
    • Ensure equitable accessibility across territories and regions.
    • Review the CES terms according to users’ needs:
      • Adjust the allocation of hours based on actual needs.
      • Standardize support worker compensation across jurisdictions and institutions.
    • Reduce waiting lists to respond quickly to requests.
    • Invest in training and recruiting qualified staff, including nurses, caregivers and therapists.

    At the same time, it is essential to develop initiatives to raise public awareness of disability issues by:

    • Promoting diversity and inclusion in all aspects of society.
    • Supporting community organizations engaged in the fight against stigma and social isolation.

    Reforming the Home Support Program (SAD) requires a concerted effort between governments, community organizations, social service professionals and persons with disabilities. Together, they can create a more inclusive, effective and adapted system, guaranteeing everyone the right to live with dignity and be fully integrated into society.

    Available resources 

    Fact sheet prepared in collaboration with Dominique Salgado (CAPVISH), with feedback from COPHAN.

    1. Home Care | Waiting Lists are Getting Longer, La Presse
    2. Home Support | A ”weak” response to Quebecers’ needs, La Presse
    3. Home care: Status quo no longer possible